Skip to main content

Gaining Weight

Well Lucas is 6 lbs 8 oz today which is great! Little man has come so far in growing which is great because with his levels being so low there was a chance he wouldn't gain.

We have increased his breast milk again and we will likely have these results Monday to see how high his levels have climbed - we hope this is the perfect amount but there is a chance it might be a little too much.

Lucas smiles more and more everyday and really reacts to Jeff and my voice. He can now sit in the swing and it is hard to tell if he enjoys it or if it annoys him, he makes lots of noises - squeaks and little cry/whimper noises. He is also starting to react to people who he sees often like Grandma and Grandpa.

We have a camping trip planned for August for a family reunion and it is amazing how I am already thinking ahead and wondering where we will be with his levels and what he will be eating. But those are worries for another day, today I am just going to bask in his baby smell ♡

Comments

Popular posts from this blog

Toughest Kid Around

Today was such a busy but great day for the three of us. Luke, Jeff and I headed to the Stollery at 9am to meet with his metabolic team.  The appointment  The dietitians always start things off with weighing and measuring Luke to see how well he is growing and if you have been following the blog you may know Luke has kinda been a bit light on the scale. However today we were happy to find out he is doing really well both height and weight wise! He is in the 50th percentile for both!! Then we talked about his diet some, touched on his formula intake and got the green light to try him with a new juice type formula (which will be good for summer holidays) Then in came Dr. S, she is his pediatrician/metabolic doctor. I love this lady! She is great at offering guidance and suggestions that will make things easier for us as he gets older, things like having him help us make his formula, help us weigh and measure his foods, those sorts of things. The exci...

Preschool anyone?!?

It has been quite a while since I posted a blog post, I didn't realize it had been since November, and I have some exciting things to catch the blog up on. As always thanks for reading and caring for our sweet little boy!! Wait... what about school? As Luke is edging closer to kindergarten age and time seems to be flying by we realized we had to make some choices about preschool. Preschool was something (pre-PKU) we had just assumed our child would attend. The question was how comfortable were we with the idea of our three-year-old, well almost four-year-old, attending a playschool where the kids have snack together... cue the fears and general feelings of discomfort.  Some playschools in our area do a rotating snack week where families take turns bringing group snack for everyone for the week and some playschools had each child bring their own snack each day to eat at the table all together. Well for Luke the obvious choice would be the sending a snack each day for him to e...

14 days and counting...

Fourteen days of safe zone levels for Lucas! What a fantastic feeling &  along with the great feeling of safe zone levels we also have the great news that we still have  no diet changes in over  2 weeks ! I am very relieved that we appear to have found a good place with Lucas' diet, it means he is getting all the protein he needs; whole protein from breast milk and the Similac formula and also the phe free protein from his PKU formula. We have a "big" appointment with his Metabolic team of doctors and dietitians on Wednesday next week and there is talk of us learning about his current tolerance, which I look forward to hearing and sharing! I have to admit that the day leading up to a phone call from the dietitians I tend to start feeling anxious, wondering if his levels have changed despite no changes in diet and just a general worry. This makes me remember what fellow PKU parents have told me; "don't let the numbers control you". I have also had p...