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Showing posts from August, 2017

Good news times two

Good News #1 The first bit of good news came via a phone call from Lucas' dietitians this week letting me know that we had the green light to starting challenging his tolerance again. I say "again" because awhile back we challenged it and eventually reached an intake high enough to balance his blood phe numbers and his tyrosine levels. Luke has been in the safe zone phe level-wise, it is just his tyrosine numbers seem to stay low and tends to drop off easily. They, the dietitians, say the low tyrosine levels leads them to think we are not fully utilizing his natural protein intake, meaning if we give him a higher tolerance then his enzyme activity should keep his phe numbers safe but also show us an increase in his tyrosine levels because his body will now be making more by breaking down the phe.  So long story short  we are pushing his tolerance which means higher amounts of natural protein (phe). Now it is not like we are adding meat or cheese or anything like t