I am going to admit it took a lot of writing, re-writing and then re-writing again to put into words all that I wanted to say in this post. It is a hard one in a lot of ways for me but I do find it very cathartic to write this all out. I admit that I struggle daily with Luke's PKU. Okay, you maybe thinking that it is normal and fine for me to struggle with it, and if you think that then you would be right... Logically I know this... I know that a life long medical diagnosis is going to have a life long struggles. However to me it is hard to admit that after 3.5 years I still have much to learn and yes, I do have daily struggles. I like to be the strong one, the problem solver, and when it comes to Luke's PKU I want to be completely in the know and honestly I prefer to be completely in control... well no one told my sons body that (or him for that matter!) The struggles Will he eat a big meal, a small meal, or will he straight up skip this meal? Keeping Luke's p