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Showing posts from February, 2017

Formula Strike

I think I have mentioned before that a HUGE  part of Luke's diet & phe management is his formula. It is like a PKU "protein shake" in that it has all the parts of protein that he needs but that he misses out on with his restricted diet. He has a set amount of formula that he must  drink in a day and if he goes a little over on drinking extra then that is alright. It has zero phe in it so will not cause him to be over his phe intake, in fact it will help him feel more full if he has eaten his days worth of phe and needs a bit more to fill his belly. When we switched over from the infant formula to the new, more age-appropriate, formula I worried so much about Luke rejecting the new one. I have read so many posts on the Facebook group about kids refusing to switch over, of parents stressing as their kids went days without drinking any formula and I was so worried. It's a big fear of mine for Luke to stop drinking his formula. Another situation I read a lot about