Where to even start... Since July we have been challenging Luke's daily phe intake to reach the maximum his body is able to process, and when we hit that number we were going to trial him on the medication Kuvan. We have had the medication since the start of August and the dietitians had said it would likely take a week or two to find Luke's max... Well fast forward to the end of last week and we are still not there yet! In July, Luke was in-taking around 17 grams of protein a day (860mg of phe) which was an amount we had become accustomed to, it meant he had a bit of freedom when it came to having gluten-free breads or muffins instead of PKU specific ones, it meant a Kinder Surprise egg every now and then wasn't out of the question, but we still were working with much less protein then a child on a normal diet. When we initially started Luke on solid foods (all the way back in 2015) he was on an intake of 7 grams of protein a day (350mg of phe), so we already felt lik