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Showing posts from November, 2017

Proud of him

Obviously we are very open about Luke's PKU and we do this in the hopes that this will make it natural for Luke to hear about his condition. To me a very important thing is that he knows he does not need to hide it, ever. We have talked about high phe/low phe foods since we found out about his PKU and especially since Luke started eating solid food.  It is something that was encouraged by his metabolic team and it really made sense to us. Plus with  me running a day home and other children around, I hoped they too would understand the importance of being careful with food. Well it seems that this method was very effective as our smart little three year old knows to ask if the food is high phe (red light) or low phe (green light), and also he knows many of the foods that are very high. Some of the things he says are: "Oh no, that is high phe and will hurt my brain" "Is this my PKU cheese or high phe cheese?" "Is this a red light Mommy?" &quo