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Lucas' Levels

Lucas went through a growth spurt a week ago and we have learned that this would actually greatly effect his levels. When we met the dietitian she mentioned that things like illness & growth spurts would lead to fluctuations in his phe levels and this was proven true.

He went from right in the normal range down to the lower levels of where we would want him to go. Now it isn't life threatening dangerous to dip down in levels but in order for Lucas to continue to grow we had to get the levels back up which was done by adding more breast milk to his diet. This was nice as we were able to leave the breast milk levels high so far and as of Thursday last week we were back in the good range for his phe. Now today, Tuesday, we are back way down. Sigh. It's a bit like a roller-coaster. 

Now all we wait for is the green light from Melissa the dietitian to go down to only testing his levels once a week which would mean only one heel poke a week but this will have to wait for him to balance out some more.

As a Mom it is scary that his levels are not exactly in the middle of the perfect range, but I am working on accepting the fact that these levels will go up and down again. Our life for awhile will be all about adjusting to meet his needs.


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  1. Unknown17 December 2014 at 07:28

    As a parent of a sick child or a normal child you are always adjusting to meet their needs. I pray for strength for you and your family, and remember God will not give you anything you can't handle :)

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    1. Tatrina17 December 2014 at 22:35

      Thank you Marie, that is completely true, every parent struggles to know and adjust to what their child needs. It's a bit of a blessing that we work so closely with a dietitian because despite his phe levels I will always have access to someone who can help me feed him right :)

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