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Reality Check

While visiting a doctor's office for a standard procedure for Lucas I had panicked moment when they went to give him Infant Tylenol. I realized I had no clue what medications he would be allowed, only that there was many he would not be able to have due to ingredients that would effect his phe levels. We stopped them from giving it to him and I placed a call into his dietitian to inquire. The Tylenol is fine, as it has no aspartame. 

 This served as a strong reality check for me that this is something that will happen in his life and I will have to find ways to adapt and make decisions based on the knowledge I have of his condition. This is where again I am thankful for our health care system where I am able to call his clinic and they can help us out.
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  1. Anonymous28 December 2014 at 00:59

    Your story of Tylenol reminded me of something my wife & I had to figure out for ourselves with our daughter who has PKU. We did some research & found out that AYour story of Tylenol reminded me of something my wife & I had to figure out for ourselves with our daughter who has PKU. We did some research & found out that ASpartame Has many different names. For example, sorbotal hat's the only one I can think of right now. You might want to ask your medical person about the other names. Hope this helps.

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  2. Tatrina28 December 2014 at 02:59

    Thank you, that's a good thing for me to know and something I feel his dietitian should have informed me of. I know they have us a list of approved medications but it is amazing how much we have to research before we consider having him take anything. I haven't even used gripe water for fear it has something in it he shouldn't have. Thank you for sharing.

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