Well as most know we have been trying more and more of Luke's low-protein foods, I had blogged about him trying some of his little pasta circles here. Well they have gone over really well, as has the low protein version of rice! Luke really enjoys it if I mix the rice with coconut yogurt (plain) and a bit of cinnamon, almost like a little guys rice pudding!
We tried the Eggz next and it was a bit more of an adventure then the pasta! Eggz powder comes in a bag and has simple instructions - add "non-dairy creamer" and let sit, then cook one side and flip. So easy.... yeah not so much. Okay the first one was a flop. I thought it would be more like normal eggs and be soft enough for him to nibble on, instead it was much to firm on the outside and not what I would consider safe for a little. So I decided to scramble them up like normal eggs, which of course they didn't do the way I am used to but this time I had softer pieces for him to try and he loved it. I tried it as well and it does not taste bad at all, it just doesn't taste like anything I have ever had so it is hard to describe. The texture is different then I am used to but this is Lukes normal and he loves it which is what matters!!
I was a little apprehensive about the bread mix, mostly because I had seen quite a few people comment on the PKU Friendly Facebook group that their first few had failed, but it finally came time to introduce more finger foods and bread is a big part of that, so back into the kitchen for me!
Well I am very very happy to say that the bread was a success and it turned out perfectly! Easy enough to make when a bread maker does the work! Lucas was a big fan of the bread with jam on it, it was a little rushed this evening as I had to get us out the door in a hurry but I am really looking forward to giving him toast and eggz tomorrow morning!!!
The one on the left is Old Mills brand whole wheat bread, a staple in our house. Those two slices of brown bread works out to 300 mg of phe where as the bread that I made for Lucas has about 22 mg of phe. So there is is very easy to see how this low protein food can really change the way people with PKU eat! I mean now I can send Luke to school with a banana and jam sandwich that does not look any different then gluten free bread!
Macaroni (elbow) noodles are another easy comparison. 100 grams of regular elbow pasta would be 700 mg of phe!!! That is way more then Luke's current tolerance of 560 mg a day!!! However 100 grams of his special low phe option is only 12 mg!! So when you compare the 700 vs 12 its really easy to see how having regular bread and pasta are just out of the question for little man!
We tried the Eggz next and it was a bit more of an adventure then the pasta! Eggz powder comes in a bag and has simple instructions - add "non-dairy creamer" and let sit, then cook one side and flip. So easy.... yeah not so much. Okay the first one was a flop. I thought it would be more like normal eggs and be soft enough for him to nibble on, instead it was much to firm on the outside and not what I would consider safe for a little. So I decided to scramble them up like normal eggs, which of course they didn't do the way I am used to but this time I had softer pieces for him to try and he loved it. I tried it as well and it does not taste bad at all, it just doesn't taste like anything I have ever had so it is hard to describe. The texture is different then I am used to but this is Lukes normal and he loves it which is what matters!! 
Success!
 |
| Fresh from the bread maker! |
I was a little apprehensive about the bread mix, mostly because I had seen quite a few people comment on the PKU Friendly Facebook group that their first few had failed, but it finally came time to introduce more finger foods and bread is a big part of that, so back into the kitchen for me!
Well I am very very happy to say that the bread was a success and it turned out perfectly! Easy enough to make when a bread maker does the work! Lucas was a big fan of the bread with jam on it, it was a little rushed this evening as I had to get us out the door in a hurry but I am really looking forward to giving him toast and eggz tomorrow morning!!!
I know it can be hard to understand what the difference actually looks like with Luke's food but here are a couple of comparisons that are easy to make.
The one on the left is Old Mills brand whole wheat bread, a staple in our house. Those two slices of brown bread works out to 300 mg of phe where as the bread that I made for Lucas has about 22 mg of phe. So there is is very easy to see how this low protein food can really change the way people with PKU eat! I mean now I can send Luke to school with a banana and jam sandwich that does not look any different then gluten free bread!
Macaroni (elbow) noodles are another easy comparison. 100 grams of regular elbow pasta would be 700 mg of phe!!! That is way more then Luke's current tolerance of 560 mg a day!!! However 100 grams of his special low phe option is only 12 mg!! So when you compare the 700 vs 12 its really easy to see how having regular bread and pasta are just out of the question for little man!
I am so happy that these low protein options are made for people who have PKU and similar metabolic disorders. It was not many years ago that the only option was formula to fill them up and from what I have read it was only one or two formula options. Whereas now we have so many to choose from and in so many flavors that is will be a lot easier for Lucas to receive his complete nutrition! It's a blessing that there are new options being offered more and more often to help make it easier in day to day life! I will be placing another order from National Foods for some more new foods, things like crackers, cookies, and pancake mix!
Thank you for reading and caring about our little Lucas! We appreciate the love and support we have been shown. I know that having so many wonderful understanding people in our lives will make life for Luke perfectly normal... whatever normal is!
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