Skip to main content

Oh yum!

Lucas having some
applesauce with my
cousin Amanda in BC

 One of my worries when we thought about solids was that the "easy" feeding methods would not be something we would be able to use, things like food pouches and self feeding foods like rusks and puffs. Well that proved an unfounded fear as pouches that are only one type of fruit or a mix of low-protein veggies and fruit are ones I can pretty easily estimate the amount of phe. The puffs and rice rusks are low in protein, especially considering how little they weigh, which is wonderful because they make great distractions when trying to cook a hungry little guy some food.



Back Left to Right:
Bread mix for a bread machine,
case of phenyl-free formula, Mushroom Burger Mix
Front Left to Right: Amino-acid supplements,
Lo-Pro Anellini, Lo-pro Rice

So now that Lucas is ready to start having "more solid" type foods I ordered up what I consider the next step in his diet. One of the things I wanted to start with was the pasta that will be a big part of his diet, all the better to get him used to the taste and texture! The bread mix is one I will try tomorrow, because the word I have seen on the Facebook support groups is that it can be a tricky thing to figure out exactly how your bread machine makes the bread.
Luke had his first lo-pro dinner!

Here is Lucas' first adventure into chunkier, more texture filled meals. Tonight I made him his pasta and the added cooked mushroom mix to his carrots. He Loved It! This meal here is only 18mg of phe, that is super low, which is great because even though right now he needs "higher" phe meals (because he doesn't eat a lot right now) this will be great when it comes to a hungry growing boy!!

I look forward to cooking for him, discovering his likes, and I know he has Grandma's who also look forward to helping with making sure he has lots of tasty yummy delights! Delights like cookies, pancakes and apple crisps!!

I welcome any questions and love to share the knowledge I have and research answers to questions that stump me :)



 I want to leave you with a photo of the newest addition to the Janssen clan, Lila Charlotte (parents Jamie & Lindsey Janssen). Lucas managed to be the youngest in the family for 9 whole months but he relinquished the title to this little sweetie! It's so special to get to see her and know we will get to watch her grow, it seems different somehow now that I have watched my baby grow so quickly!

Comments

Popular posts from this blog

Toughest Kid Around

Today was such a busy but great day for the three of us. Luke, Jeff and I headed to the Stollery at 9am to meet with his metabolic team.  The appointment  The dietitians always start things off with weighing and measuring Luke to see how well he is growing and if you have been following the blog you may know Luke has kinda been a bit light on the scale. However today we were happy to find out he is doing really well both height and weight wise! He is in the 50th percentile for both!! Then we talked about his diet some, touched on his formula intake and got the green light to try him with a new juice type formula (which will be good for summer holidays) Then in came Dr. S, she is his pediatrician/metabolic doctor. I love this lady! She is great at offering guidance and suggestions that will make things easier for us as he gets older, things like having him help us make his formula, help us weigh and measure his foods, those sorts of things. The exci...

Preschool anyone?!?

It has been quite a while since I posted a blog post, I didn't realize it had been since November, and I have some exciting things to catch the blog up on. As always thanks for reading and caring for our sweet little boy!! Wait... what about school? As Luke is edging closer to kindergarten age and time seems to be flying by we realized we had to make some choices about preschool. Preschool was something (pre-PKU) we had just assumed our child would attend. The question was how comfortable were we with the idea of our three-year-old, well almost four-year-old, attending a playschool where the kids have snack together... cue the fears and general feelings of discomfort.  Some playschools in our area do a rotating snack week where families take turns bringing group snack for everyone for the week and some playschools had each child bring their own snack each day to eat at the table all together. Well for Luke the obvious choice would be the sending a snack each day for him to e...

14 days and counting...

Fourteen days of safe zone levels for Lucas! What a fantastic feeling &  along with the great feeling of safe zone levels we also have the great news that we still have  no diet changes in over  2 weeks ! I am very relieved that we appear to have found a good place with Lucas' diet, it means he is getting all the protein he needs; whole protein from breast milk and the Similac formula and also the phe free protein from his PKU formula. We have a "big" appointment with his Metabolic team of doctors and dietitians on Wednesday next week and there is talk of us learning about his current tolerance, which I look forward to hearing and sharing! I have to admit that the day leading up to a phone call from the dietitians I tend to start feeling anxious, wondering if his levels have changed despite no changes in diet and just a general worry. This makes me remember what fellow PKU parents have told me; "don't let the numbers control you". I have also had p...